MY-CIL Workshop 2024:
MY-CIL Deliverables 2020-2024
R1. Literature review of evidence on transition and CIL practices
- David R. Mannand Mira Wang. What happens after high school? A review of independent living practices to support youth with disabilities transitioning to adult life. Journal of Vocational Rehabilitation 55 (2021) 169–184 DOI:10.3233/JVR-211155
- Harrison, S., Sandy-Hanson, A., & Freeman, G. (2021). Promising practices to help minority youth with disabilities transition to postsecondary life. MY-CIL Practice Brief #1. Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/promising-practices-to-help-minority-youth-with-disabilities-make-the-transition-to-postsecondary
R2. Survey of CIL practices and challenges
- Stacie Feldman, Purvi Sevak, Mira Wang, and Sharonlyn Harrison. To What Extent Are CILs Serving Out-Of-School Youth from Minority Backgrounds? MY-CIL Practice Brief #3 (2022) Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/to-what-extent-are-cils-serving-out-of-school-youth-from-minority-backgrounds
- Stacie Feldman, Purvi Sevak, and Mira Wang. (2022). Working with out-of-school youth from minority backgrounds: What CILs offer and what they value. MY-CIL Practice Brief #4. Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/working-with-out-of-school-youth-from-minority-backgrounds-what-cils-offer-and-what-they-value
- Hill, Anna, and Purvi Sevak. Trends in How Youth and Young Adults Received Services from Centers for Independent Living After WIOA. MY-CIL Practice Brief #10. Administration for Community Living, U.S. Department of Health and Human Services, 2023. Available at https://www.mathematica.org/publications/trends-in-how-youth-and-young-adults-received-services-from-centers-for-independent-living.
R3. CIL collaborations to engage minority youth with disabilities
- O’Neill, J., Wang, M., & Martin, F. (2022). Improving service delivery to out-of-school youth from minority backgrounds: Case study findings from the Southern California Resource Services for Independent Living. MY-CIL Practice Brief #2. Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/improving-service-delivery-to-out-of-school-youth-from-minority-backgrounds-case-study-findings
- Todd Honeycutt and Frank Martin (2023). How do CILs and VR agencies work together? CIL-VR agency collaborations for out-of-school youth with disabilities from minority backgrounds. (MY-CIL Practice Brief #9). Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/how-do-cils-and-vr-agencies-work-together-cil-vr-agency-collaborations-for-out-of-school-youth
- Bendall, L. (2024). Engaging transition-age Hispanic and Latino youth with disabilities in Oakland, California: Case study findings from Berkeley CIL and Fruitvale CIL (MY-CIL Practice Brief #13). Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/engaging-transition-age-hispanic-and-latino-youth-with-disabilities-in-oakland-california
- Patnaik A, Honeycutt T. An Assessment of Collaborations Between Centers for Independent Living and Vocational Rehabilitation Agencies Around Transition-Age Youth. Rehabil Couns Educ J. 2024;13(1):1-15. PMID: 39286059; PMCID: PMC11404558.
- Wang, Mira, Frank Martin, Naomi Hess, Stacie Feldman, N’gadi Osman, John O’Neil, Gina Freeman, and Kate Mulligan. “Engaging BIPOC Out-of-School Youth with Disabilities Through Interagency Collaborations: Lessons Learned from Centers for Independent Living.” Rehabilitation Counselors and Educators Journal. October 10, 2024. https://doi.org/10.52017/001c.124185.
R4. Documenting the size and distribution of minority youth with disabilities using data mapping
- Anna Hill and Purvi Sevak. (2022). Demographics of youth and young adults with disabilities who are not working and not in school: descriptive findings from National survey data. MY-CIL Practice Brief #5. Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/download-media?MediaItemId={E753A9E2-BC3A-4505-A9C1-6F2F8E17AED0}
- MY-CIL project. “Making Data on Minority Youth More Accessible to Centers for Independent Living.” https://www.mathematica.org/features/my-cil-reports Accessed 18 October 2024.
- Purvi Sevak and Anna Hill. (2022). How might CILs use data on diverse populations of youth and young adults? MY-CIL Practice Brief #6. Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/-/media/internet/features/2022/mycil-data-user-guide.pdf
R5. Developing and testing CIL service innovations for minority youth
- Aguillard, K., Jackson-McLean, G., & McClure, J. (2024). Lessons from the MY-CIL Learning Collaborative: CIL practices to improve readiness to reach and serve out-of-school youth with disabilities from minority backgrounds (MY-CIL Practice Brief #11). Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/cil-practices-to-improve-readiness-to-reach-and-serve-out-of-school-youth-with-disabilities
- Aguillard, K., Jackson-McLean, G., & McClure, J. (2024). Lessons from the MY-CIL Learning Collaborative: CIL strategies to engage and empower out-of-school youth with disabilities from minority backgrounds (MY-CIL Practice Brief #12). Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/cil-strategies-to-engage-and-empower-out-of-school-youth-with-disabilities-from-minority-backgrounds
R6. Design, implement, and evaluate a CIL intervention to improve transition outcomes
- Aguillard, K., & Wang, M. (2022). Ways CILs can conduct effective outreach to youth with disabilities from minority backgrounds: Focus group findings (MY-CIL Practice Brief #6). Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/ways-cils-can-conduct-effective-outreach-to-youth-with-disabilities-from-minority-backgrounds-focus
- Aguillard, K., & Wang, M. (2022). Ways CILs can sustain engagement of youth with disabilities from minority backgrounds: Focus group findings (MY-CIL Practice Brief #7). Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/ways-cils-can-sustain-engagement-of-youth-with-disabilities-from-minority-backgrounds-focus-group
- Aguillard, K., & Wang, M. (2022). Program and activity recommendations for CILs working with youth with disabilities from minority backgrounds: Focus group findings (MY-CIL Practice Brief #8). Administration for Community Living, U.S. Department of Health and Human Services. Available at https://www.mathematica.org/publications/program-and-activity-recommendations-for-cils-working-with-youth-with-disabilities-from-minority
- Aguillard K, Wang M. “Trying Something New Comes with so Much Anxiety”: Outreach, Engagement, and Program Recommendations from Transition-Age, Out-Of-School Youth with Disabilities from Minority Backgrounds. J Rehabil. 2023;89(3):6-17. PMID: 39286011; PMCID: PMC11404559.
Other dissemination resources, webinars, and conferences
- MY-CIL interactive state-by-state data maps web tool. https://www.mathematica.org/features/my-cil-reports
- MY-CIL webinar (March 2022). MY-CIL team members conducted a webinar on CIL promising practices for engaging transition-age youth with disabilities from racial and ethnic minority backgrounds, including out-of-school youth. A total of 310 participants registered and 162 attended the live event. The webinar and slide deck materials are available on the MY-CIL website. https://www.mathematica.org/events/independent-living-services-for-minority-youth-with-disabilities-strategies-and-success
- NIDILRR Section 21 Capacity Building Meeting. In 2023, MY-CIL team members presented at the NIDILRR Section 21 Annual Capacity Building Grantee Meeting, which focused on research that addresses the needs of racial and ethnic minority communities.
- MY-CIL Webinar (March 2023). MY-CIL conducted a webinar to highlight findings from three focus groups held with out-of-school youth from minority backgrounds. Youth participants and CIL staff discussed recommendations and strategies for improving CIL services for youth with disabilities from racial and ethnic minority backgrounds. The webinar and slide deck materials are available on the MY-CIL website. https://www.mathematica.org/events/advice-from-the-experts-minority-youth-with-disabilities-share-program-improvement-opportunities
- Purvi Sevak, Kimberly Aguillard, and Frank Martin (April 2024). MY-CIL Project Study Findings. Presentation for the National Association of Rehabilitation Research and Training Centers (NARRTC) conference (April 2024). MY-CIL team presented findings from several studies at the 2024 NARRTC conference to inform researchers and disability audiences of key MYCIL findings. https://narrtc.org/
- Purvi Sevak and Frank Martin. Center on Knowledge Translation for Disability & Rehabilitation Research. Casebook #11. Minority Youth and Centers for Independent Living. https://ktdrr.org/products/ktcasebook/minority-youth-and-centers-for-independent-living.html Accessed October 23, 2024.
MY-CIL Research Projects:
Investigator: David Mann (Mathematica)
MY-CIL will ground its activities in a review of the existing literature on promising or evidence-based transition practices for youth with disabilities, particularly those from minority backgrounds. The literature review will be among the center’s first activities and provide the foundation upon which to develop and refine the other activities to empower CILs to more effectively serve minority youth.
Investigators: Susan Dooha (CIDNY), Purvi Sevak (Mathematica), and Richard Petty (ILRU / GL1)
MY-CIL will conduct a survey of CILs that systematically collects information on their practices when reaching out to and serving youth with disabilities, particularly those from minority backgrounds. The survey will gather information to (1) systematically document the national landscape of current CIL practices in this area, (2) identify CILs that are implementing approaches they believe to be particularly effective, and (3) document challenges that CILs face in serving the target population and areas in which TA or staff training would be beneficial. The study findings will help fill the knowledge gap about CIL practices, enable us to compile existing promising CIL practices, and provide the critical CIL input needed to shape the MY-CIL research, dissemination, technical assistance, and training activities.
Investigators: Elizabeth Cardoso (Hunter), Todd Honeycutt (Mathematica), and Richard Petty (ILRU)
This research project will extend the information collected via the CIL survey to provide an in-depth examination of CIL practices and collaborations with community organizations intended to address the needs of youth with disabilities from minority backgrounds. The project involves two related activities: (1) an analysis of RSA-911 case service report data to identify state patterns in state vocational rehabilitation (VR) agency connections with CILs to deliver services to youth with disabilities with minority backgrounds; and (2) information collection via interviews with staff of selected CILs with significant experience serving youth with disabilities from minority backgrounds, along with staff from selected other key organizations, including VR agencies, with whom these CILs collaborate. The information collected will provide specific knowledge about the collaborations that CILs have with other organizations and identify practices, lessons, facilitators, and challenges in serving the target population.
Investigators: Purvi Sevak (Mathematica) and Susan Dooha (CIDNY)
This project will analyze American Community Survey data to estimate the number, characteristics, and distribution of out-of-school youth with disabilities at the state and county levels, highlighting youth from minority backgrounds. The estimates are intended to support improved CIL outreach to the target population by mapping specific local areas where outreach might be beneficial. We will use the data to conduct a case study of the CIDNY catchment area, also incorporating data from several New York City sources that CIDNY could use to enhancing its outreach to youth with disabilities from minority backgrounds. The case study will serve as a model for other CILs to use in refining their outreach strategies for out-of-school minority youth.
In this multiyear research project, we will collaborate with CIL staff to explore, develop, implement, and test different short-term CIL service innovations to support successful transition outcomes for minority youth with disabilities. Together with the CILs, we will apply the new knowledge generated from the first four research projects to co-create and test interventions using a human-centered design approach known as Learn, Innovate, Improve. The evidence obtained through these tests will inform the larger intervention that we will develop and test under our final research project. Working closely with CILs will ensure that the innovations developed and tested reflect the insights and current capacity of CILs for serving youth with disabilities from minority backgrounds.
In this multiyear research project, we will design, implement, and evaluate a comprehensive intervention to improve CIL transition services for out-of-school youth with disabilities from minority backgrounds. We will use the evidence generated through all research projects and lessons learned during our training and technical assistance activities to develop the intervention. The intervention will synthesize promising findings to generate a CIL service model with the potential to increase (1) the number of out-of-school youth with disabilities from minority backgrounds served by participating CILs and (2) the number of youth making positive progress toward transition goals that include education or employment. A critical aspect of the intervention is obtaining rigorous evidence on its efficacy through an experimental evaluation. This evidence will ensure that the project’s results withstand scrutiny and provide the confidence that the service model improves outcomes for the target population. A final product of this project will be a manualized model intervention based on the best available evidence that CILs can implement to engage and serve minority youth with disabilities.